Jacob Hanel

Junior Seminar Web Autobiography

Jacob Hanel


"we won't bleed to death from a paper cut" -Jeff Johnson


I was born on October 21st, 2002 at 10:10 in the morning. I was a little 6-pound baby and was mute until I was 4 years old. My parents taught me sign language and had a teacher come to the house every week, they thought I was deaf and suffered from autism. Fortunately I am not deaf nor am I suffering from autism but from what I have heard from my parents, one day I just started saying full sentences and unfortunately for their sake, I never stopped. My mom’s ancestry is also cursed with Christmas disease (Hemophilia B), although the name sounds oh so jolly, it is actually a bleeding disorder that prevents wounds such as cuts and bruises from healing at a normal rate. It was discovered in the late 17th century starting in the royal family of Queen Victoria and was passed down because they thought it was a great idea to “stay within the bloodline”. My grandfather who has passed due to suicide and my cousin were also affected by this disease as well. They knew as soon as they were born they had Hemophilia B but when I was born, the doctors tested me for Hemophilia A, and the test came back negative. It was not until I was around 5 years old when I bit a hole through my tongue that eventually never stopped bleeding and when it clotted over it started to swell up to the size of a golfball. My mom and I tried every doctor around town until one doctor told me to stick my tongue out. He ripped that sucker right off and sent me to a Mayo specialist in Rochester Minnesota where they found out I had it as well. As of now, it is uncurable and stops me from a lot of activities I enjoy now, such as skateboarding and snowboarding ZombieBoardshop. Living with hemophilia is not all that bad though, I have learned to love and have a passion for art and playing video games, I also get to go to hemophilia camp where I learn and practice how to infuse my self with the medication. Fast forward to when I was 16, I was bombing down hills on my cruiser when I almost hit by a car and swerved to the right and fell. I broke 2 ribs, punctured my left lung and was stuck in the hospital for a whole week. I was in the ICU for 2 of those days in which the doctors thought I was going to die due to the fact that I had more than 2 pints of blood in my lung. Although I did not really learn my lesson I am still here.



“I wish there was a way to know you're in the good old days before you've actually left them.”- Andrew Bernard (Ed Helms)